About Us

Photo of LSSN TeamOur Mission

  • Promote universal Lynch Syndrome screening on all newly diagnosed colorectal and endometrial cancers.
  • Facilitate the ability of institutions to implement appropriate screening by sharing resources, protocols and data through network collaboration.
  • Investigate universal screening for other Lynch Syndrome related malignancies.

Read our by-laws.

Our Members 

This public membership list only includes LSSN member institutions that elected to be listed. The number of institutions that are members of LSSN are listed by state in the map below.

Our Story

In September 2011, the Michigan Department of Community Health, with one-time funding from the Centers for Disease Control & Prevention (CDC) Office of Public Health Genomics, sponsored a meeting for representatives of institutions from throughout the United States who were performing or considering universal Lynch Syndrome screening on newly diagnosed colorectal cancers.

At that meeting, the 35 participants — representing the National Institutes of Health, CDC, academic medical centers, cancer facilities, and health departments — discussed the need for a network focused on universal Lynch Syndrome screening. They unanimously agreed to form the Lynch Syndrome Screening Network (LSSN) to enable ongoing cooperative efforts.

The group obtained NIH funding from the Epidemiology and Genetics Research Program to hold a follow-up LSSN meeting in 2012.

LSSN Board of Directors

Hampel, Heather DNA_0349
Heather Hampel, MS, CGC
The Ohio State University
photo of Brandie Leach
Brandie Heald Leach,
Cleveland Clinic

Jessica Ezzell Hunter, PhD
RTI International

Laurel Hochstetler, MS, MSc, CGC
University of California, San Francisco

LSSN Leadership Appointees

LSSN Executive Director
Deb Duquette, MS, CGC
Northwestern University

LSSN Communications Director
Deborah Cragun, PhD, MS, CGC
University of South Florida

Contact Us

For LSSN membership information-

Deb Duquette

Questions about the LSSN website-

Deborah Cragun


Links to More Information